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Project CONNECT is part of the Carolina-Shaw Partnership. The purpose of the project is to encourage more involvement in research and help explain why certain groups of people are faced with diseases and other illnesses more than others.
Having people of all backgrounds take part in research is one way to help improve health and quality of life.
What is health research?
Health research can include a variety of studies. Some examples include:
- Surveys and interviews
- Group discussions and educational workshops
- Disease prevention studies
- Clinical treatment studies
What should I expect if I decide to take part in Project CONNECT?
Project CONNECT acts as a point of contact between researchers and those interested in hearing about new studies in our community. Project CONNECT maintains a listing of information collected from people taking part in the project. The list may include things like one’s:
- Contact information
- Age
- Race/Ethnic group
- Gender
- Basic health status
If you want your name on the list, you will complete a short form so that we have some basic information about you. While you may refuse to give any information, to include you on the list, we need your name and contact information. Your name will then be added to the list.
When we hear about research studies, project staff may contact you to see if you are interested in being in one or more research studies. You can agree to participate or refuse at any time. At the end of each year, we will contact you to update the list. You have the right to take your name off the list at any time.
What are the benefits of participating?
- You have a chance to help others and improve the health and quality of life in our communities
- Receive project newsletters featuring updates on the latest research affecting the community
Other benefits include:
- Better development of medicines and programs to prevent or treat illness
- Increased involvement of people from all backgrounds in research studies
How is my privacy protected?
All information is kept private and secures in a locked location. What you share with the project will not be shared with anyone outside this project unless you give us permission. No information will be shared with health care providers or to insurance.
How are participant’s rights protected?
A volunteer community advisory board routinely helps to oversee project activities. The project has also been approved by the Committee on the Protection of the Rights of Human Subjects (Medical Institutional Review Board) at the University of North Carolina at Chapel Hill. If you have any questions about your rights as a research participant, you may call the Chairperson of the Committee at (919) 966-1344.
How can I contact Project CONNECT?
If you have any questions, or would like to put yourself on the list, you can call the Research Registry project toll free at (866) 849-1579.
What are health disparities?
Health disparities refer to the pattern of disease and dying that occurs more often among certain groups of people than others.
